Some great news about Liam, but his dad is blind as a bat...

Yesterday little Liam the great went for all his 1 year checkups (eyes, ears, muscle tone, development, but also for his injections and immunizations)...

The great news is that he is perfectly healthy! In fact, not only is he healthy, he is doing so much better than we ever anticipated! He is reaching all of his milestones, and even surpassing some. The effects of the damage to his brain are minimal, and we hope they will become even less of an issue as he grows and mature. Naturally, our doctor (responsibly) warned us that with such a premature child the first 2 years or so are always dicey, so he is not out of the woods yet. However, you wouldn't say that there is any problem if you were to see him!!!

How different things were last year this time. I know some of the photos below have been posted before, but they never seem to stop amazing me and filling me with gratitude for all that has passed.

Last year this time Megan was in hospital (for the second time) trying VERY hard not to have our baby! I remember when the pediatrician and neonatal ICU manager came to see us, we knew something was amiss. They arrived together and gave us the rundown (worse case scenario) of what could happen:

• If Liam was born during that week he would be very frail and prone to infection.
• There was a high chance that his lungs were not developed, so we needed to prepare ourselves for him to spend months on a respirator, and then further time an ventilator once he had learned to breath.
• It was likely that he would suffer some brain hemorrhages as a result of his brain being so fragile and not yet capable of coping with the stimulation and trauma of being out of the womb three months early.
• There was a high likelihood that he would need numerous bouts of surgery to help sort out any digestive problems (which are common to neonatal premature babies).
• It was likely that he would either suffer damage to his eyes, or be entirely blind, as a result of the respiration and ventilation (oxygen damages the eyes).

After they had shown us some pictures, explained all of the risks, and allowed us to ask questions they took me into the neonatal ICU (my first of MANY visits over the next few months). I scrubbed my hands and arms, put a mask over my face, and was instructed not to touch anything or anyone. Then they showed me a little boy who was born at more or less the same stage as Liam was due to be born - he was on an open resuscitation table (with heathers), pipes, probes, and a myriad of bells and whistles attached.

It was so traumatic - when I left the ICU and had to return to the ward to tell Megie about the experience I remember sitting in the parents lounge for a few minutes just weeping... I couldn't believe that we were actually going through this! After I had composed myself I went in to Megie's room and did my best to paint everything in a positive light - but in my heart I feared that we were going to loose our little miracle boy. It was a feeling that I would feel many, many, times after his birth.

Megie and I cried our eyes out! Heck, when I think back on November, December, and January last year all I can recall is an aching hole in the pit of my stomach, and seeing the world through teary eyes.

I remember that we prayed and pleaded with God to help us, and to keep Liam from being born. We begged God to keep him and Megie safe, and then we sat in a stunned silence...

Those were dark times! But, I will confess they were made bearable by the loving support and prayers of so many friends and family - we were receiving literally hundreds of emails and text messages from concerned people (some whom we had never even met)! It was an image of the body of Christ loving itself to wholeness.

Each afternoon of that week I would leave the hospital, fetch Courtney from aftercare and do my best to be composed and strong. We kept her bag packed, so that if I got a call from the ICU Courtney could go to her aunty Madika (and have clothes for school etc.). Then we would go to the hospital and watch a bit of TV with Megie - Courtney would cry all the way home.

Tough times.... I get quite emotional even thinking about it!

Yup, so he was born very early. I got a phone call on the Thursday evening, 15 November, to say get here quickly since Megie's water had broken and there was no way to keep Liam from being born. The nurse who phoned me warned me that it was serious and that we need to be prepared for the worst. I rushed to the hospital as fast as I could (my Polo Tdi has never been quite so fast since! I was doing close to 200km/h on the highway to the hospital). When I got there Megie was in the delivery room and our gynecologist, the pediatrician, the neonatal ICU staff, and the theater sisters were all ready. There wasn't enough time for a C-section, so.... Well, you can imagine. (The photo above shows how small he was with the little blue teddy bear. The one below shows how large he is in relation to that same bear today!)

Our lives changed that instance... Suddenly so many things that were not really important just fell out of our sphere of concern. For the next three months our lives were simply focussed on spending as much time as we could in the ICU with him, and making sure that Courtney (who was not allowed into the ICU) has as normal a life as possible.

Well, it's a year later, and Liam is healthy, strong, intelligent, agile, in fact he is just perfect, perfect in every possible way!

I just don't know how we could ever thank God for such an incredible and undeserved gift! If you read this post today, or find it in a year, or two, or three, please could you offer just a short little prayer to thank God for the gift that he has bestowed upon us? We cannot do it by ourselves, we need your help to fully than God for His mercy and grace!

Well, I also had my eyes tested yesterday... it turns out I am blind as a bat.... I do have glasses, but like most people who THINK they can see without them I don't often wear them. Well from now on you'll see me 'be-specticled' much more frequently... It's a bugger getting old!

Comments

[Anonymous]

Hi there -
what a beautiful little boy. may god bless you and stay with you forever and may your son continue to survive the odds and be extraordanary!! A BEAUTIFUL FUTURE FOR A BEAUTIFUL FAMILY...
my husband and i are currently 27.5weeks pregnant with our first son (after many years of trying to fall pregnant - we are!). The feeling I feel for him already is undescribable. aLL the best to you.. lorri
diva_lorri@yahoo.com.au

[psalm128]

Thank You Lord God for Your wonderful and precious gift of Liam! It is humbling that You would bestow such a precious gift on us when we are so undeserving - but You see us as deserving don't You. I pray abundant blessings on this family!

I'm so happy for you and your family! We are expecting our third child and I've been inspired by your hard but triumphant story. Be blessed and congratulations!

[Zahra]

Hi Dion

Everytime I feel down, i read your blog and your miracle baby never fails to restore my spirit and faith. I have just heard of a friend who is 20 weeks pregnant and the baby has spina bifida. They will operate immediately after birth but she is understandably devastated. I sent her the link to your blog page to demonstrate the power of faith and prayers and I'm sure she'll find some comfort and hope in your story. Much love to Megan.

[Melinda]

Hi Dion

I finally plucked up the courage to look at your website (my friend Zahra ref me). It is truly inspirational. We found out on 12 May 2009 at 20 weeks, that our baby has Spina Bifida. We were given the option to terminate, but have opted to trust God and be thankful for this wonderful blessing / precious life. I am now 24 weeks pregnant and our little girl is quite busy. We are going for scans every 2 wks and pray that all goes well and that the fluid on the brain remains in limits for the ceasar only to be done 14 Sept. What a beautiful little boy you have. May God bless and keep your family. Melinda